State Action Alerts

Below are a list of issues we are taking action on at the state level. If you live in one of the affected states please take action and contact your local legislators.

Keep Epilepsy Medication Affordable in New Hampshire

In New Hampshire, House Bill 717 would prohibit prescription drug manufacturers from offering coupons or discounts to cover insurance copayments or deductibles. Copay assistance programs help people afford the medications prescribed by their physician. The House Committee on Commerce and Consumer Affairs is holding a hearing on HB 717 today! Tell your legislators to oppose HB 717!
Protect Access to Epilepsy Care in Maine

Maine has introduced legislation this session, Legislative Document 1009 (LD 1009), which would place limits on the use of step therapy protocols by insurers and expand access to physician-directed care for people with epilepsy and other chronic conditions. On March 14, 2019, epilepsy advocates will be at the State Capitol asking members of the Committee on Health Coverage, Insurance and Financial Services to support this bill. They need your help! Ask your legislators to pass LD 1009!
Urge Nebraska Legislators to Support a Safe and Comprehensive Medical Cannabis Program

The legislature is considering Legislative Bill 110, which would ensure Nebraskans living with epilepsy and uncontrolled seizures can gain safe, legal access to medical cannabis as a treatment option. This bill would create a comprehensive medical cannabis program accessible to individuals with debilitating medical conditions after consultation with their treating physician or provider. Nothing should stand in the way of individuals gaining access to this potentially life-changing and life-saving treatment. Urge Nebraska legislators to support LB 110 today!
Urge Your State Senator to Support SF 489 and Help Bring it to the Floor!

Senate File 489 would prevent insurers from changing the terms of health plans, as they relate to prescription drug coverage, mid-year. Without this bill, health plans are free to end or change coverage for a particular medication mid-year. The bill passed unanimously out of the Senate Human Resources Committee earlier this month. Now it’s time to move it forward. Tell your Senator to support this critical piece of legislation and have them urge Majority Leader Whitver to bring SF 489 to the floor for a vote!
It’s Time to Pass Sam’s Law!

In Texas, HB 684 would mandate training for all school personnel in seizure recognition and first-aid response. This legislation, known as Sam’s Law, would bring awareness and provide school personnel with information and training to best respond to a student experiencing a seizure. The bill will be heard on the House floor. In order to move the bill forward, it must pass. Urge your legislators to support Sam's Law!
Tell Nevada Legislature to Protect Access to Anticonvulsants

State Bill 283 would remove protections for certain medications in Nevada’s Medicaid program, including anticonvulsants for the treatment of epilepsy. The bill has been amended to retain protections for the treatment of HIV, antirejection medications for people with organ transplants, and medications for the treatment of hemophilia. Urge the Senate Finance Committee to reject or amend the bill to retain protections for anticonvulsants!