The Epilepsy Foundation supports policies that promote research and innovation into new therapies and devices, as well as proposals to lift barriers to getting new treatments to patients faster. Innovation is of particular importance to the nearly one million people living with epilepsy who don’t have their seizures under control and are seeking new treatments and a cure, as well as many Americans living with complex chronic and rare conditions that are not appropriately managed with current treatment options.
To help further research and innovation, we specifically supported the Advancing Research for Neurological Diseases Act (S. 849), which creates a system to gather data about neurological conditions and diseases. This legislation was enacted as part of the 21st Century Cures Act, which President Obama signed into law on December 13, 2016. We will continue to advocate that epilepsy is explicitly included in this registry at the Centers for Disease Control and Prevention (CDC).