Brayden, 4, from Pennsylvania, was diagnosed with Doose syndrome in January 2017. He experiences five different types of seizures and has been hospitalized twice since his diagnosis. As of July 2017, Brayden has been seizure-free for over a month.
Immediately after his diagnosis, Brayden’s mother enrolled him in Medicaid. While Brayden’s family has private insurance, it only covers 80% of his hospitalizations and requires co-pays for medication and other treatment. Medicaid has helped to cover Brayden’s out-of-pocket costs and cost-sharing, and completely covers the medication that keeps him seizure-free. Without Medicaid, this medication would otherwise cost his family more than $2,000/month.
Brayden’s mother Virginia says that she wishes policymakers thinking about cutting Medicaid would put themselves in her family’s shoes. “Imagine your out-out-pocket costs if insurance was only covering 80% of the cost of hospitalization.” she says. “One of [Brayden’s] hospitalizations was seven days. That’s a lot of money for individuals and families to try to come up with.”