Kentucky is the first state in the U.S. to have enacted Seizure Safe School legislation. On April 13, 2018, Governor Bevin signed House Bill 147, also known as the Lyndsey Crunk Act, into law. The bill was named after the Epilepsy Foundation of Kentuckiana’s 2016 Teens Speak Up! representative. During their Epilepsy Advocacy Day in Frankfort on March 7, 2018, the Epilepsy Foundation of Kentuckiana and their participants advocated strongly for the passage of H.B. 147.
H.B. 147 will improve the care of students with epilepsy and seizure disorders in schools by ensuring the administration of FDA-approved medications prescribed to treat seizure disorders, require students to have a seizure action plan in their file and ensure that the action plan is properly distributed to any school personnel responsible for the supervision of the students, and by requiring school personnel to be trained in seizure recognition and response using the Epilepsy Foundation training materials.
On July 26, 2018, the Epilepsy Foundation of Kentuckiana (EFKY) attended a ceremonial signing of the bill with Governor Bevin. Several families are pictured along with Deb McGrath, Executive Director of EFKY, Lyndsey Crunk, Charles Wilson, and Jackson Sturgeon. Crunk, Wilson, and Sturgeon are former Teens Speak Up! participants.